Recommandations et consensus

Mis à jour : mardi 19 septembre 2017

 


 

Généralités

 

pdf Travelling with cystic fibrosis: Recommendations for patients and care Team members ECFS 2010
weblink  Cystic Fibrosis Foundation Practice Guidelines for the Managment of Infants with Cystic Fibrosis Transmembrane Conductance Regulator-Related Metabolic Syndrome During the First Two Years of Life and Beyond Cystic Fibrosis Foundation 2009
weblink  Cystic Fibrosis Foundation Evidence-Based Guidelines for Management of Infants with Cystic Fibrosis Cystic Fibrosis Foundation  2009
weblink  Conduite à tenir en urgence  Orphanet 2009
pdf  Mucoviscidose - Protocole national de diagnostic et de soins pour une maladie rare  HAS 2006
pdf  Immunisation in the current management of cystic fibrosis patients  ECFS 2005
pdf  Standards of care for patients with cystic fibrosis: A European consensus  ECFS 2005
pdf  Early intervention and prevention of lung disease in cystic fibrosis: a European consensus. ECFS  2004
pdf Cystic Fibrosis Adult Care Cystic Fibrosis Foundation 2004

 

  

Dépistage et diagnostic

pdf Recommandations pour l'annonce du diagnostic de mucovisidose après dépistage néonatal (document complet) Vaincre la Mucoviscidose 2003
pdf Recommandations pour l'annonce du diagnostic de mucovisidose après dépistage néonatal (synthèse) Vaincre la Mucoviscidose 2003
pdf Recommandations françaises pour la réalisation et l'interprétation du test de la sueur dans le cadre du dépistage néonatal de la mucoviscidose Société Française de Pédiatrie 2010
pdf Sweat induction and collection - Standard operating procedure ECFS - CTN 2014

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Cystic Fibrosis Foundation Practice Guidelines for the Managment of Infants with Cystic Fibrosis Transmembrane Conductance Regulator-Related Metabolic Syndrome During the First Two Years of Life and Beyond Cystic Fibrosis Foundation 2009

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Guidelines for Diagnosis of Cystic Fibrosis in Newborns through Older Adults: Cystic Fibrosis Foundation Consensus Report Cystic Fibrosis Foundation 2008
pdf Diagnosis Sweat Testing : The CFF Guidelines Cystic Fibrosis Foundation 2007
pdf A European consensus for the evaluation and management of infants with an equivocal diagnosis following newborn screening for cystic fibrosis ECFS 2009
pdf Consensus on the use and interpretation of cystic fibrosis mutation analysis in clinical practice ECFS 2008

 

Hygiène

pdf Infection Prevention and Control Guideline for Cystic Fibrosis CF Foundation 2013
pdf Hygiene Guidelines for People with CF when attending CF related events CF Europe 2013
pdf Consensus Aspergillus et Mucoviscidose Réseau Muco Ouest 2013

 

Kinésithérapie

A venir      

 

Nutrition

weblink

Recommendations for Management of Liver and Biliary Tract Disease in Cystic Fibrosis Cystic Fibrosis Foundation 1999

weblink

Clinical Care Guidelines for Cystic Fibrosis-Related Diabetes Cystic Fibrosis Foundation 2010

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Evidence-Based Practice Recommendations for Nutrition-Related Management of Children and Adults with Cystic Fibrosis and Pancreatic Insufficiency: Results of a Systematic Review” Cystic Fibrosis Foundation 2008
pdf Nutrition in patients with cystic fibrosis: a European consensus ECFS 2002

 

Pneumologie

pdf Consensus sur la prise en charge de la primocolonosation à Pseudomonas Aeruginosa Réseau Muco Ouest 2013

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Antioxidants in Cystic Fibrosis – Conclusions from the CF Antioxidant Workshop, Bethesda, Maryland, November 1-12, 2003 Cystic Fibrosis Foundation 2007
pdf Cystic Fibrosis Pulmonary Guidelines Cystic Fibrosis Foundation 2009
pdf Inhaled medication and inhalation devices for lung disease in patients with cystic fibrosis: A European consensus ECFS 2009
pdf Airway Clearance Therapies Cystic Fibrosis Foundation 2009
weblink Chronic Medications for maintenance of lung health Cystic Fibrosis Foundation 2013
pdf Allergic Bronchopulmonary Aspergillosis in Cystic Fibrosis Cystic Fibrosis Foundation 2003
pdf Lung transplantation in Cystic Fibrosis Cystic Fibrosis Foundation 1998

 

Protocoles d'urgence

pdf

Protocoles d'urgences respiratoires - Hémoptysies Réseau Muco Ouest 2013

pdf

Procédure de prise en charge d'un syndrôme d'obstruction intestinale distale (SOID) Réseau Muco Ouest 2013

 

Recherche clinique

pdf

Clinical Trials in Cystic Fibrosis ECFS 2007

 

Sexualité et procréation

pdf Guidelines for the management of pregnancy in women with Cystic Fibrosis ECFS 2008

 

Soins infirmiers

 

Voir page Coordination infirmière de notre site

pdf Bonnes pratiques et gestion des risques associés au PICC (cathéter central à insertion périphérique) SF2H 2013
pdf Prévention des infections associées aux chambres à cathéter implantables pour accès veineux SF2H 2012

 

Transplantation

 

pdf Practical guidelines : Lung transplantion in patients with Cystic Fibrosis Hirche et al. 2014

 

Autres atteintes

 

pdf Hépatopathie et mucoviscidose Réseau Muco Ouest 2014

pdf Ostéopathie et mucoviscidose Réseau Muco Ouest 2014
pdf Recommandations pour la prise en charge de la déminéralisation osseuse dans la mucoviscidose Sermet et al. 2007

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